Butterfly Child
Wersja papierowa
Autor:
Corradin Silvia
Wydawnictwo:
Lulu PressISBN: 978-13-12-97920-8
Format: 15.2x22.9cm
Liczba stron: 428
Oprawa: Miękka
Wydanie: 2015 r.
Język: angielski
Dostępność: aktualnie niedostępny
0,00 zł
Butterfly Child is the story of a mother's journey through grief and incredible challenges. From the stillbirth at full term of her first baby, followed by a miscarriage, to the birth of her son Nicky, diagnosed with Recessive Dystrophic Epidermolysis Bullosa, a rare skin blistering disorder that requires extensive wound care and is considered life threatening. Challenges include Insurance Companies refusal to cover the most basic needs for any EB patient to Silvia's trying to make sense of her situation, from a divorce to a remarriage and another scary pregnancy. Her youngest son, Connor, is 100% healthy and she never, ever, takes it for granted.